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ؐϰYؐϰYôί

rg2018-01-30 11:06 [] ˚⣺ ݋KСİ
xؐϰYԦ-øGAAȱؐϰYPompeԓͨ^Yõ\ȻڼԻߣ؄eځȺУĴRϴҪSLD\оˆTͨ^оCЋ냺ؐϲIOPD11

ՈӛסվþWַ:TϾHـپW,ղرվ朽ӵַ:http://www.iieye.cc/1784943.html

߳,܊^ҕl,Цtxt

    α-øGAAȱؐϰYPompeԓͨ^Yõ\ȻڼԻߣ؄eځȺУĴRϴ“Ҫ”SLD\оˆTͨ^оCЋ냺ؐϲIOPD11tlؐϲLOPD12ԼԔyԵλĻ߻ؐϲy230ʹô“|VMS/MSyyYxDBSѪеGAAøyɹyֻ܏IOPD/ LOPDϽMb<10ԻʹԓоMS/MS GAAԺܺõ؏IOPDLOPDbx96ļȱʧಡyMS / MS GAAzyṩһķMؐϰYYĶpD\Δ

    ǰһ·vƼ{?տyBMegan CrowleyһλҊ20q

    CrowleyһNؐϰYPompe disease񽛼⼲ԼĴwڸHС\g˾ĺҊͻ׃_laһN

    vտyʾCrowleyŏ{ˌʳƷcˎ֣FDAspOܺͺҪmȻCrowleytgӭPעؐϰYͺҊҲкܶ˾ߴٌԯͨ^FDAܕɞyԵĺ

    WMtWԺ񽛲WPuneet OpalʿQĆ}FDAijYȱͿƌWҿоĻߔ^

    FDAˎʳĿڷֹԯOpalf

    “_ҪFDA䮔‘Ȯ’”Opalf

    CrowleytPriya Sunil KishnaniʿǶſ˴WtWtWzWTƽd^Ҋ܉@˸{Pע

    Kishnani ʿf“1998҂ڶſ\Megan˲rֻ15´mȻ޵H‰ѳL@ó”

    ſ˴Wұʾ냺ͳؐϰYlʞ1/12000——1/20000CrowleyĸHŬίEһһλHλI1|Ԫ——tˎ˾——ֻĺӡThe Cure: How a Father Raised $100 Million — and Bucked the MedicalEstablishment — in a Quest to Save His Children2010ijӰtˎExtraordinary Measures

    Megan CrowleyƼ{?տyćvFڲ˽ؐϰYc֪ԣ

    1. һ[Ի

    @ζֻͬrpHzɂ²ؐŕlֻyһͻ׃ؐĺͨȫRyͻ׃

    2. Ӱ푼

    ij˔yɂͻ׃ؐrCwȱһNԭֽǵøһN鼡ṩ@“pԵԭ^

    “KҲһNͨڳF֮ǰļp”Opalf

    3. YFڋ냺

    ڋ냺İY“o_\̱”KishnanifAg냺ܟo̧^_ʼܛ]gô

    “XƺҪָg” Kishnanif

    ϵyY׿AʾKĴҎģU

    4. س̶ȡQͻ׃

    Yćس̶ȺFĕrgȡQͻ׃Ĵ_еĺӕFCrowleyصİYӵİYtp΢Kishnani f

    5. Пo

    Ŀǰį܉oԓCrowleyه݆ұʹúCo

    6. Ӱ

    ՄMeganš͟rKishnanif“@Щͬ”

    “Ŀ˂ԓJ]J֪”

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